Exclusive: My Secret Struggle with Asperger's, By Susan Boyle

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Exclusive: My Secret Struggle with Asperger's, By Susan Boyle

The bestselling singer and Britain’s Got Talent alum writes about her battle with the disorder. Her documentary Susan Boyle: Her Secret Struggle airs Wednesday, April 9 at 10 p.m. ET on Ovation.

Simple Susan, mad, odd, bizarre. Names I have been called over the last 53 years of my life.

Born in a small Scottish village at a time where medicine and diagnosis was in its infancy and hadn’t made the great advancements that we see today, my parents were told not to expect much from me as they were led to believe I had been brain damaged at birth.

But you see I’m not mad or simple or any of the other names that I have been called over the years. I have Asperger’s and it doesn’t define me, it gives a greater understanding of who I am.

In brief, Asperger’s is a developmental disorder that falls within the autistic spectrum. It’s lifelong and experts believe that about 1 in 200 people have a form of Asperger’s in varying levels. People with Asperger’s normally have an above average intelligence. The difficulties that people with Asperger’s have lies within social interaction and communication as well as having sensory, motor and organizational difficulties. Many people with Asperger’s experience isolation and a lack of understanding which affects their everyday lives, which often results in frustration, anger, depression and a low self-esteem.

For over 50 years I struggled not understanding what was wrong, feeling that I had been unfairly labeled but at 51 when I was diagnosed with Asperger’s it was a huge moment of relief, understanding and acceptance.

For just over a year I kept my diagnosis private. After all, how could I discuss a diagnosis that I was just learning about and understanding why in situations I react the way I do? After a year of learning and gaining knowledge I finally felt comfortable to speak of my diagnosis and allow people to share an important part of my life.

It was carefully managed. It had to be. This was so important to me and also to all those with Asperger’s that I needed to ensure that it was my words, my story and not twisted or ridiculed by those less understanding.

It was incredibly important to convey this very personal diagnosis in exactly the right way. I did not want people getting carried away and making judgments or headlines spinning out of control making a mockery. So I decided that the only way to show what life with Asperger’s is like was to show people and I was lucky enough to be afforded the opportunity to do just that with a documentary. I wanted to stop being an outsider and show people what my life was like, bring them in to my world and hopefully give people a greater understanding of what Asperger’s is and the day to day struggles that will always exist and the reactions to situations.

My show follows the journey in the lead up to my first live shows that I performed in Scotland in the summer of 2013. A dream of mine, I had been desperate to perform on my very own tour but it comes with pressures and uncertainties and for someone with Asperger’s this magnifies the condition.

It was and still is a relief. Of course there are still the ignorant who regardless will name call because they don’t understand or won’t take the time to understand but for me and the people around me who I care about it has given us all a better understanding of who I am and why I do what I do and why my reactions to situations are different to others.

Robert Ormerod/Statement/Redux

It shouldn’t be a taboo subject. Quite the opposite. We need to become more perceptive and embrace the difference and gain a greater knowledge of what Autism and Asperger’s are and why it occurs.

I have not written this with a view to evoke pity. Quite the opposite. Don’t pity me. Understand me.

I have a blessed life. The past five years have afforded me experiences I could never have imagined and met some of the most fantastic people. I have been unbelievably fortunate and every day I am so grateful that this is what my life has become. No one, least of all me, can quite believe how my life has transformed for the better. I completed the Scottish tour successfully and am currently touring England performing 19 dates around the country. Life is going from strength to strength and nothing is holding me back!

Which is why it’s so incredibly important that the label of Asperger’s doesn’t define me—it gives a greater understanding of who I am. In fact it gives society a greater understanding of all of us diagnosed and living life with Asperger’s.

The exclusive U.S. premiere of Susan Boyle: Her Secret Struggle will air on Wednesday, April 9 at 10 p.m. ET on Ovation. Visit ovationtv.com for more information.

Posted in The Daily Beast: Click on link to see article

http://www.thedailybeast.com/articles/2014/04/09/exclusive-read-susan-boyle-s-essay-on-her-secret-struggle-with-asperger-s.html

Susan Boyle: Her Secret Struggle -

Dream Becomes a Reality (Preview) - Ovation in the USA...

On Cable TV in the USA on April 9, 2014 at 10:pm -
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#SusanBoyle's best performances: http://ow.ly/vA96N Watch the documentary special tomorrow at 10 PM ET/7 PM PT!

The USA title is changed to SUSAN BOYLE: HER SECRET STRUGGLE

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10 pm Wednesday, April 9

The Ovation Channel in the US has started advertising the latest
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Susan Boyle: Her Secret Struggle - Nerves Start to Build (Preview) - Ovation

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While practicing some songs, Susan Boyle has a mild meltdown as her show director calms h

PICTURES ARE FROM SUSAN'S SUCCESSFUL SCOTLAND CONCERT, JULY 2013

Susan Boyle: Singer and Now Businesswoman

By Marie Sheahan Brown

Who can forget the YouTube masterpiece? She strode and sashayed onto the stage with golden stature and confidence. She sparred wittily with the three famous judges, wearied by their long day of auditions in Glasgow, Scotland. She didn’t look the part of a “professional singer,” although one might perceive that being “currently unemployed” at forty-seven left little extra for beauty-shop pampering. Was she, rather, a comedienne? Susan Boyle audition

Then she sang. The formerly skeptical audience stood enraptured, tears welling as she belted out “I Dreamed A Dream” from Les Misérables with stunning clarity and passion.

More than five years after the seven-minute audition video aired on Britain’s Got Talent on April 11, 2009, and promptly hit worldwide news feeds, multitudes in America and beyond remember Susan Boyle. Since she first broke Amazon pre-sale records in September 2009, millions have bought her albums. Each year, a new carefully crafted album has been released in time for Christmas. Since 2009, five albums have garnered sixty-three gold and ninety-four platinum sales levels in forty-two countries. Her sixth album, Hope, will be released on October 21 in the United States.

Scottish and United Kingdom audiences thrilled to Miss Boyle’s first full-length concert tours in 2013 and 2014. Now she’s coming to America—home of an immediate and strong support base—starting in San Diego on October 8, and singing her way across the southern half of the United States at venues in twenty cities. A sweep through the northern states could likely follow in the future.

See http://www.susanboylemusic.com/us/events

Many have written about Susan Boyle’s difficult and graced life. Her 2010 autobiography, The Woman I Was Born to Be, is a good source. Now fifty-three, she carefully revealed late in 2013 that, after decades of mistaken assumptions, she had finally been diagnosed with Asperger’s Syndrome. The relief of self-knowledge strengthens and encourages her after a lifetime of dealing with debilitating anxiety and panic attacks, and some difficulty in handling emotions and relating comfortably to people.

“This is a point: People may have problems,” she states in a documentary, “but they’ve got other things as well. And they’ve got a lot more to offer.” (Gammon, Lottie, produced, filmed, and directed. “There’s Something About Susan.” Firecracker Films Ltd. for ITV, 45:37 minutes. 2013)

Fewer analyses have considered her role as a small businesswoman and philanthropist whose personal success has enhanced the lives and small businesses of countless others not only in her native Scotland but also in, for example, America.

Miss Boyle, easily mistaken for a stately five feet ten in the famous video, is, in fact, barely over five feet tall with soft, dainty hands and feet—a huggable China doll. So she does qualify as a smallbusinesswoman despite her multimillions in sales, which also benefit business giants like Sony Music Entertainment UK Limited; SYCOmusic (Simon Cowell); Simon & Schuster, Inc.; Amazon; and, more recently, concert tour bus companies. In significant other ways, she retains her focus on the little ones.

The woman who had “never been married, never been kissed” and remains a virgin has, since 2009, given birth with astonishing fecundity. Lewis Hyde well describes her kind of gift and fertility in his 1983 classic, The Gift: Imagination and the Erotic Life of Property: “I have hoped . . . to speak of the inner gift that we accept as the object of our labor, and the outer gift that has become a vehicle of culture. I am not concerned with gifts given in spite or fear, nor those gifts we accept out of servility or obligation; my concern is the gift we long for, the gift that, when it comes, speaks commandingly to the soul and irresistibly moves us.”

Mr. Hyde first explores traditional “gift economies,” in which citizens are considered wealthy not according to how much they acquire but how much they give. In fictional form, Jean M. Auel’s well-researched Earth’s Children series (The Clan of the Cave Bear and five sequels) describes the creativity and ingenuity that led people to survive, to form communities, and to work cooperatively for mutual benefit. Goods, services, storytelling and musical talents, art, and many other gifts were appreciated in deeper ways than they might be in a typical “market economy.”

According to reviewer JoAnn Schwartz, “Above all, Hyde is interested in examining the effect our current immersion in the market economy and the myth of the free market has both on our view of gifts and on our ability to give and receive them. The market economy is deliberately impersonal, but the whole purpose of the ‘gift economy’ is to establish and strengthen the relationships between us, to connect us one to the other. It is this element of relationship which leads Hyde to speak of gift exchange as ‘erotic’ commerce, opposing eros (the principle of attraction, union, involvement which binds together) to logos (reason and logic in general, the principle of differentiation in particular). A market economy is an emanation of logos.

“In a market economy,” Ms. Schwartz continues, “one can hoard one’s goods without losing wealth. Indeed, wealth is increased by hoarding—although we generally call it ‘saving.’ In contrast, in a gift economy, wealth is decreased by hoarding, for it is the circulation of the gift(s) within the community that leads to increase—increase in connections, increase in relationship strength. Through this book, Hyde helps us focus on the importance of gifts, their flow and movement, and the impact that the modern market place has had on the circulation of gifts.” (http://southerncrossreview.org/4/schwartz.html)

Susan Boyle does appreciate the financial security that she had never known, especially in the fearsome years after her mother died in 2007, when Miss Boyle kept her house cold so that she could afford the heating bill. Yet more important, Susan Boyle has said all along, “I sing to make people happy.” When she was a girl, the gift spoke “commandingly to the soul”—her soul. She honed, honed, honed the gift to perfection over decades of world obscurity. She sees with gratitude and humility the effects of this gift on people worldwide. When this gift is pointed out to her in personal conversation, she bows her head and lowers her eyes shyly. “Thank you.”

Miss Boyle’s fame and financial success have boosted tourism modestly in West Lothian, Scotland, with its pastoral more than spectacular scenery, a region that has suffered from bouts of economic depression and unemployment over the past few centuries. In February 2013, for example, following a centuries-old pattern, the main employer in the area—Halls of Broxburn meat processing plant—was closed by foreign owners, leaving 1,700 unemployed.

Lorraine Campbell co-owns and manages The Balbairdie—a nicely refurbished old hotel and pub in Bathgate, West Lothian. When the economy suffers, The Balbairdie feels it. Asked how she copes, Ms. Campbell replied, “You just keep going.” Happily, the local economy has improved some since 2013, according to Ms. Campbell in April 2014.

Miss Boyle has engaged experts like Andy Stephens, manager; Nicola Phillips, publicist; and Andrew Panton, creative and vocal director, to name a few. She has provided jobs for local personal assistants who handle correspondence, scheduling, wardrobe consultation, and myriad other details; gardeners; carpenters to renovate the council house she grew up and still lives in (her first big post-Britain’s Got Talent purchase); a housekeeper; women who fix her hair, do her nails, and apply her makeup for special public appearances and photo sessions; and others who tend to basic needs of a now-busy celebrity who still prefers to live in her home village, stop in at her favorite small shops and establishments, and take the bus.

Miss Boyle has also given seed money and sponsorship for creative business and charitable ventures in her local community and beyond. One start-up, Boyle’s Boutique, is an extended-family cottage industry that sells, among others, products featuring the new Boyle Tartan created for the family. Products may be ordered online.

Susan Boyle’s very capable personal assistant Sadie Boyle (no relation) says Miss Boyle gets about four hundred emails weekly, many requesting her generosity. This kind of response to another’s fame and fortune is not uncommon.

More unusual, and a clearer example of the fruits of the “gift economy,” is the generation of a worldwide community of Susan Boyle supporter-fans who have formed friendships, discovered or rekindled their own creative gifts, invested thousands of volunteer hours, spread financial generosity, and—to a small extent—started creative cottage enterprises for profit or merely to cover expenses.

Several unofficial Susan Boyle fansites live on the Internet. The first and largest, still flourishing, is www.susan-boyle.com. On April 11, 2009, Paul Wood, a London construction worker, watched Miss Boyle’s audition on TV and immediately put up a website. Starting within hours after the audition aired, people from many continents to whom Susan Boyle’s gift spoke “commandingly to the soul” were “irresistibly move[d]” to find out anything they could about her on the Internet. They frequently stumbled across Mr. Wood’s hastily launched site with its prolific discussion threads generating hundreds of written comments every day in the first two months of Miss Boyle’s fame.

To bring some order to the conversational chaos, Mr. Wood launched a companion Forum in June 2009 with more sophisticated software, accessed through the main website. Anyone could (and still can) join for free. The main rules are that one not be an Internet troll (a term and experience many had never heard of), that one behave reasonably civilly as outlined in posted guidelines, and that one not use the Forum itself for commercial purposes (more on that later).

Volunteer moderators and techies keep the discussions and online experience on an even keel. Online advertisements generated by Google AdSense and Amazon sales linked to the website (“SuBo Store”) help pay for the normal operational expenses.

In early 2010, Mr. Wood announced that he was going to auction off the website (some fifty thousand registered members) and its Forum (a few thousand registered members at the time). The worldwide member community could not bear the prospect of being taken over by some unknown commercial entity with other goals. So they decided to bid on the fansite themselves. A few members—by no means wealthy—each voluntarily loaned trusted fellow members a few thousand dollars to buy the fansite during the auction. The effort succeeded in July 2010.

Navigating through some tensions and hurt feelings (typical in any community anywhere), the worldwide Susan Boyle Fans International, Inc. (SBFII) community established itself as a non-profit corporation registered in Delaware, USA. SBFII elects a multinational volunteer board of directors; keeps meticulous financial records and files annual tax returns; maintains bylaws; and holds online annual meetings and elections engaging active members. Technically not a charity, SBFII uses AdSense and SuBo Store income to cover modest expenses and keep a healthy bank balance. Funds left over from voluntary collections (often for tasteful gifts for Miss Boyle for special occasions) are donated to a charity of Susan Boyle’s choice, frequently benefitting children in Scotland. By December 2011, SBFII repaid all interest-free loans given by members to buy the website; it remains debt free. No member gets paid for services to SBFII or personally benefits financially.

From the beginning, even silver-haired grandmothers proficient only with email learned to navigate the fansites in order to participate in a community of people who have experienced an inexplicable response to Susan Boyle—both her singing and her unique way of being—unlike their response to other favorite singers. Within months, members began gathering in person around the globe (often in restaurants, boosting local economies). They attended (and surreptitiously filmed and posted to the fansites for the enjoyment of those who could not attend) Miss Boyle’s performances in various cities (Britain’s Got Talent tour venues in the UK; Los Angeles, Chicago, New York, Tokyo, and more). Supporter-fans flocked to these events even though—until only 2013, when she first tried her own full-length concerts in Scotland—Miss Boyle was slated to sing just one, two, maybe three songs. These gatherings supported local hotels, B+Bs, restaurants, cab drivers, shops, and other travel-related businesses.

Miss Boyle and her team soon experienced that supporter-fans who came to these early events were older or at least more mature than stereotypical rowdies at, for example, Justin Bieber concerts. They saw that typical Susan Boyle supporter-fans are responsible, respectful, fun loving, generative. They include retired or active professionals—teachers, nurses, techies, writers, musicians, artists, farmers, truckers, businesspeople, social workers, radio hosts, professors, lawyers, homemakers, construction workers, postmasters, foresters.

To most gatherings (usually at restaurants) supporter-fans bring homemade memorabilia to share, including commemorative buttons and red scarves to identify themselves in various venues. The popularity of such items led SBFII to add another linked site, “Fan Creations,” linked in turn to the creators’ individual websites. Products include non-Susan-Boyle-related fan creations. Currently, three members offer SuBotique Hand Painted Apparel; Creative Images by tweek (Buttons, Mugs, etc.); and Susan Boyle Professional Singer chronicles gathered from news and other sources.

SBFII members often post creative ideas and images to discuss in writing with one another. Memorably, in 2009, a member from Texas, one from Iowa, and other volunteers, coordinated an international quilting bee. Supporter-fans from every continent, including Antarctica, created and mailed squares for a handmade quilt presented to Miss Boyle at a brunch following her debut solo appearance on the Todayshow on November 23—the day her first album, I Dreamed A Dream, was released in the United States and quickly broke world records in several categories.

Members can upload Susan-related videos that they have created; share poems that they’ve written; upload posters that they’ve designed digitally to document Miss Boyle’s career and accomplishments; upload news reports of supporter-fan activities, complete with photographs; post fine pencil drawings or paintings displaying talent the artists had only recently discovered; and offer a place where members can contribute their own essays. These essays, sometimes written in French or other non-English languages, often try to explain how the wee singer with the big voice; the shy woman who communicates profoundly—cor ad cor loquitur—through music others have written; the multimillionaire who stays in her small lifelong home and still takes the bus—the essentially inexplicable Susan Boyle—“irresistibly moves” them.

SBFII and other volunteers take responsibility to daily and positively post or re-post Susan Boyle news, photos, and encounters on Twitter, Facebook, and other social media. Their Internet involvement began immediately when Miss Boyle became famous—and once again experienced the bullying known since childhood, only this time inflicted by some members of the media and anonymous commentators. She writes in her autobiography, “What I didn’t know then, because I didn’t have a computer at the time, was that every time there was a mean comment about me in the press, a dozen messages of support would appear in response. On the Internet there was a growing community of fans. I had no idea how many people out there in the world felt moved to stick up for me, and I want to thank everybody for that.” (The Woman I Was Born to Be, pages 188–189)

Miss Boyle’s professional team also encourages creativity from fans. Starting with the first documentary of her life, Susan Boyle: I Dreamed A Dream, produced in 2009 by Talkback Thames, fans were invited via the official www.susanboylemusic.com site (picked up and promoted by volunteer sites) to send short videos of themselves saying “Hello, Susan!” with backdrops representing their locations. Several clips from around the world were chosen for the documentary. As a lead-up to Miss Boyle’s second album, The Gift, she held a worldwide “Susan’s Search” competition, inviting any amateur singer to upload a brief selfie singing “Silent Night.” The winner, Amber Stassi, a thirty-three-year-old paramedic from Brewerton, New York, sang “Do You Hear What I Hear?” with Miss Boyle on the album and at the 2010 outdoor Today show appearance in New York City.

In the 2013 and 2014 concert tours in Scotland and the United Kingdom, Miss Boyle and her team selected local choirs to serve as back-up choruses in every city, receiving standard financial compensation. Already individual choir members in the United States are tweeting: “Aaliyah Buchanan ‏@Itsuko_Sora I’m to pumped, i get to sing for Susan Boyle!!!!” and “Drew Mikuska ‏@DrewMikuska Hahahahaha I’m singing backup for Susan Boyle.”

Already in the twenty cities spanning the southern United States, supporter-fans from as far away as Australia and Scotland are buying tickets. They are organizing pre-concert dinner-camaraderie gatherings for supporter-fans, some of whom they have never met in person but know through their written posts on fansites. Restaurants, hotels, theaters, airlines, public transportation providers, cab drivers, and many small businesses will benefit. Susan Boyle, her team, and numerous music-related vendors will profit.

Yet in Susan Boyle’s “gift economy,” which she neither forecasted nor manipulated, money can facilitate but cannot possibly buy the greatest benefits to the community in which she finds herself to be the generator and principal member. In this higher economy, she is both blessed herself and a blessing to countless others.

As recently reported on her official website, Susan says about her upcoming United States concert tour: “This is a brilliant moment for me. The past five years have been incredible, and it just keeps getting better. I have spoken so often about wanting to tour America and be able to visit different cities for the first time—I’m so excited. This really will be fantastic, and I can’t wait for October. The US embraced and supported me from the beginning, and it really feels like a second home. So I can’t wait to get on the road and perform there.”

Source:Small Business Exchange Northeast